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A guide for carers by carers

yaHnhaeoldorluewo A guide for carers by carers More and more people are living with cancer because of earlier diagnoses and better treatments This has resulted in a growing need for people like you who care for someone with cancer This resource has been produced for you by carers of people with cancer During our time caring for a loved one with cancer we became aware that a carer can often become a forgotten ?gure who is not provided with the information and support they need Working with Macmillan Cancer Support we have used our experiences to develop shape and write a resource to support other people caring for adults with cancer This handbook is the result of that work It can also be helpful for professionals who support carers of people with cancer The handbook contains handy tips we hope you will ?nd useful when it comes to dealing with the ups and downs of caring for someone with cancer We have also included information on organisations and other sources of support that helped us during this demanding time We hope they provide you with the support you need too Hello and how are you As you read this handbook ? ? Remember that no two situations are identical and no two experiences of caring are the same This is why the handbook is not intended to be a book of instructions ?? a ? how to be a carer ? book Instead it includes lots of things that will hopefully strike a chord with you ? Always remember that when it comes to medical questions it is essential you speak to a healthcare professional for advice ? You will often see reference to ? the patient ? We felt that although this may not be the ideal choice of words it was a practical way to refer to the person you are caring for ?? a shorthand way that is easily understood ? You will see references to many organisations and services within this handbook If the contact details for these organisations and services are not provided on the page you will ?nd them in the Further information chapter at the back of the handbook Information and support Working with professionals Relationships Moods and emotions Practicalities Employment and work Ethical and legal matters Death dying and bereavement Life after caring Further information Contents Information and support ? Information about services ? Organisations that can help ? Information about the disease and how it will progress ? Information on your rights as a carer ? A ny number of times people asked me ??How ? s your wife ? or ??How ? s Margaret ? but very rarely did they say ??And how are you ? ? Michael Information and support Getting reliable information in a format to suit you is a really important way to help you feel more in control of your situation Sometimes as a carer you can feel as if you are on your own Having